Welcomed with open arms 

May I live like the lotus, at ease in muddy water”

Today I took what felt like a very big step. We took our two youngest sons to play group which is definitely one of my highest ranking fears on my hierarchy. 

When our older two were younger we went to this same playgroup weekly and it was the best group in our town for us. It is ran by members of the church and their support was always wonderful. When they asked ‘how are you?’ It’s because they genuinely wanted to know, it wasn’t an ‘in passing’ conversation. They would sit and talk through any worries, all the ups and downs and they were always there. During my third pregnancy I wasn’t very well and we stopped going, and when our son was around six months old we returned for a short while but then I was expecting our fourth child and with that came new health issues so again we stopped going.

With the way this OCD spike has manifested it’s made me avoid anything and everything to do with children. I feel bad for having this type of OCD, guilty all the time and so so anxious and I worry, ‘what if I get even worse thoughts triggered that I haven’t even thought of yet?’ which my counsellor tells me is catastrophising so I avoid. I do this ALOT. 

The church got in touch and sent beautiful flowers yesterday while I was at counselling and I felt undeserving of them. I struggle accepting help and kindness because OCD makes me feel so bad about myself. 

This morning though, I fought against every doubt OCD told me and we went to play group. It wasn’t easy. I was irritable towards my husband as blind panic set in when we were getting ready to go. Several times I snapped, ‘I can’t go’. I got there though. Full of nerves and apprehension about socialising and worrying about getting triggered. We were welcomed with such love and sincerity. I saw a friend there to and as I watched my second youngest running around and the helpers helping him onto the slide I just felt this overwhelming feeling…I loved that he was enjoying it so much but I was reminded of how he’s not been to a playgroup in around eight months and how I missed the old me so much. I thought of how we’d go to playgroup every week but because of OCD and what it’s done to me it’s stopped me doing all the things that made me who I am, thinking this overwhelmed me. Everyone was being so compassionate and I just felt so underserving of their loving support. 

I took a moment in the toilet to have a small cry to myself because I just needed to get away at that moment and allowed myself that time. I went back in and stayed and chatted and smiled and felt a slight sense of normal, a slight sense of belonging again and a slight sense of me again. I chatted to one of our dear friends from the church and told him a brief overview of what I had experienced and was met again with kindness, love and  support.  

I know I have to carry on despite what my OCD tells me. I have to force myself through the mud like the lotus flower and bloom anyway. It’s easy to forget you can carry on even when OCD is playing the drums in your mind. Tonight I feel as if a weight was lifted. I know not to believe it won’t return but for right now, in this moment, the drums are a little quieter. 

A x 



Something I’m learning is to use the word ‘yet’. My counsellor always gets me to do this. 

When I say, ‘I don’t feel better’ or ‘I can’t do that’, she’ll get me to say, ‘yet’ and I can see why. It took me a while but I can see the benefits. 

By adding that one word it’s drumming it into me that I will do everything I was able to do before this spike and I will make steps. 

‘I don’t feel better yet’

‘I can’t cope without my husband yet’ 

‘I can’t be in busy public places yet’ 
(Just a few examples) 

When I began counselling mid January after the spike I said things like, ‘I can’t hold my children’, I can’t say words beginning with P, I can’t be around my children, I can’t get through a day without crying, I can’t get through a day without muscle relaxants, I can’t see my friends, I can’t get through the day without full blown panic attacks, I can’t watch any tv’ and so on. 

But you know what? I have done all those things. Yes I still get anxious and I’m still training my brain and it’s still a battle and I’ve still got a lot of things I haven’t done yet. Even early on in sessions she would ask me to say ‘yet’ and she was right. Even when I thought I couldn’t do all these things, I now know it was just I couldn’t do them at the time. I’ve learned that I can do all the things I use to but it will just take time. A lot of time yes and maybe there will always be things that feel challenging but I will do them just not yet

Adding that one word reminds me to be hopeful and reminds me of all the things I’ve already achieved that I didn’t think I could when I began recovery. 

Keeping this short and sweet. I hope it’s helpful.

A x 

Sweet dreams 

Sleep…the one time of the day where our minds can shut off and we can gain some relief from the noise of OCD right? 
Not always, well not for me and not for many, many others. I have found dreams can be upsetting and I can wake already feeling defeated. Sometimes they don’t even have to be what I would consider, that bad. Last night I dreamt that I forgot to pick my second oldest son up from preschool (a different preschool then he actually goes to) and my dad said he would collect him. I was half and hour late and as I was driving (I can’t drive in real life) my dad was walking on the pavement next to me and I felt like all I wanted to do was just get to my son but time was just moving so slowly. I was moving in a car but moving at walking pace. I thought I can get there quicker but my dad offered, I let him cross at the zebra crossing and think I had to be somewhere else and that was all I remember. I woke feeling bad. Feeling guilty.  
Since this OCD spike started last December I actually didn’t start getting bothered by my dreams until I began counselling. The meds I was taking would sedate me and I remember not having dreams. I was relieved. Then once I began therapy and weaned off the medications I began having more dreams. Every night I hope I don’t have a nightmare that will bother me for ages, I make sure the last think I look at on my phone before bed is positive.  
There was one study I found online, link below, that said actually with people suffering with OCD there was no difference in the reports of dreams that caused anxiety than those without the illness. This really surprised me but on reflection it makes sense. Dreams like thoughts come involuntarily and so just like everyone has intrusive thoughts, everyone has bad or peculiar dreams at times. Dreams don’t reflect us, yes they can feel more personal because we, of course obsess over them and search for answers, ‘why did I dream that? Where was that from?’ assuming they must be saying something about us. Others wake and shake it off as ‘that was an odd dream’ and carry on with their day but with OCD that’s not so easy. We attach meaning and feel bad that we had dreams of unpleasant content. We can feel bad and guilty before we’ve even gotten out of bed. I often ruminate about dreams, pray I won’t have more dreams and am even more aware of avoiding things like the news or anything like documentaries or tv series that I think are bad before bed. I carry out compulsions to make me less likely to have a bad dream. I didn’t realise I was doing these things to this extent.
Link: https://www.ncbi.nlm.nih.gov/m/pubmed/11516768/
I take comfort in knowing that this is common. I’ve seen many, many accounts from OCD sufferers expressing that they to struggle with dreams (or nightmares as they are often called when unpleasant) that can leave them ruminating on them. 
Here’s the definition of dreams.

Are these not exactly what we experience during wakefulness? So I feel, the best way to move past dreams is to apply exactly what I’m learning about my OCD to my dreams. I did that this morning and although feeling still a bit uncomfortable, I feel less personally attached to my dream last night, like I’ve created some distance between me and it and it’s not a personal assault on my character. 
I wanted to talk about this because there isn’t much research on it so it’s a topic I felt I wanted to bring to light.
A x 

‘Me too’

So yesterday I shared the darkest part of my OCD. The part that has ruined my life and I’m currently working very hard on rebuilding.
Within a short while of sharing my story, the responses began coming in and wow!! They involved words of amazing compassion and support and two words that made every ounce of anxiety worth it, ‘me too’.
Wonderful courageous people were replying and reaching out saying they suffered the same theme as me as well. I struggle to describe how much that comforts me and how thankful I am to hear responses of such brave stories from others.
This theme also known as PCOD (which still makes me a bit uncomfortable reading when I see it) is common! It’s so so common, like seriously, right now as you read this there are others with the exact thoughts you are having, ‘What if it’s not OCD? what if I want to? What if I’m a monster? Do I even know who I am anymore?’ And the list is endless, there are many many others feeling and thinking exactly how you are. Exactly the same.
In the claws of OCD it can feel like you are drowning, like you can’t lift the thoughts or feelings, and like you have this big secret eating away at you because if you talk about it OCD tells you ‘you’re admitting something and will be judged, maybe you’ll lose your children if you say it out loud, you could lose all your friends or your job, whatever it is you hold dear, and it will make it true if you talk about it’ and if you suffer in silence OCD tells you ‘you’re hiding something, others should know because you’re a potential threat, stay quiet’… OCD will do what it can to tell you, you are trapped and this won’t stop or ever get better.
I wanted to open a dialogue on this theme of OCD and show it for what it is…it’s an unpleasant theme that OCD picks on because it’s an easy target. OCD is a chemical imbalance. An imbalance that fills us with fear and dread. An imbalance that can be treated. I promise I’m here for you, if you need to reach out and talk, I can offer a listening ear, I get how scary it is, I get how the thought of even thinking about saying it can pause you in your tracks. There’s nothing about OCD that I could hear that will make me think less of someone. I completely get it. It’s disturbing, and ugly and uncomfortable. If talking about it is something you want to do then please reach out and if the times not right then that’s okay to. There’s no right or wrong.
I want to say a massive thank you to everyone who responded yesterday and continues to respond for your bravery in sharing your stories to.

I am just so taken aback by the compassion I’ve been met with and hearing those precious two words in this debilitating illness, ‘me too’.
Featured photo: I took this photo today on a short walk to an incredible forest. It’s been nearly two weeks since I went out for a walk (I’ve got a broken ankle at the moment) and I’ve had a rough couple of days with OCD being extra bad and the responses to my story gave me the motivation to get out today, sit in a forest and just breath so thank you!
A x

The story OCD didn’t want me to write

Here is my soul poured onto a page.

I am writing this for the millions of people suffering with this mental illness. For the many, many people that have this exact same theme and thoughts that are too fearful to speak up. You are stronger than you know and you are not alone.

I am sick of being dictated to by OCD. I am sick of being too afraid to move, breathe or function because of OCD. I am sick of not knowing who I am because of OCD. I am fed up of doubting everything because of OCD. I am sick of loosing time because of OCD and I am sick of not speaking up about things because OCD tells me to stay quiet.

Thoughts I battle because of OCD.

‘Don’t say that because you will be judged, don’t say that because no one will understand, If you say that thought out loud you are admitting it’s true, if you speak up it’s because you believe it, if you talk about how you are feeling it will make it worse, if you speak up the fear will feel even more real, there’s a threat so stay quiet, you are alone, there is no one else going through this, you must be evil, you must be a monster, No-one has this problem, what kind of person thinks and feels like this?What if you want it to be true? What if you become this awful person?What if you’ve lost the old you forever and this is who you are becoming?What if you feel like this forever? What if you if therapy doesn’t work for you? What if this isn’t treatable? What if this isn’t OCD? What if I am a horrible person? What if I can’t ever get past this? What if I stop having morals? Why me? Why is this happening? What went wrong? Why won’t it back off? Just stop and leave me alone!, No one will understand, I will be judged, I will be misunderstood, What if people become afraid of me? What if no one trusts me? What if people think I’m a threat?Your past history of never hurting anyone doesn’t matter, What if I go back to how unwell I was at Christmas? Maybe it would be easier if I wasn’t here, Maybe that’s an option if this doesn’t get better, I will die before hurting anyone. What if I go onto medications but they don’t help like last time? What if I am going crazy? Why is my brain doing this to me? Who am I? Why is this the theme OCD picked? Why can’t I go back to worrying I might stab someone? That felt so much less scary compared to this, Why has it picked on something so disgusting? Why do I have bad days? I must be so weak. Why can’t I get out of this? Why can’t I believe my own mind when I tell myself I am a good person? Why am I doubting everything? Why does everything make me feel uncomfortable? I must be being punished? Does God hate me? Do I believe in God? What do I believe? Do I know myself who I am? I must prove or disprove these thoughts? What do I even like? Can red still be my favourite colour? It’s the colour of blood so that must mean I like blood? What kind of person likes to look at blood? The foot stool is red so does that mean I’m a bad person for looking at it? Who am I? Am I straight? What if I am gay? What if my marriage is a lie? What if I am a lie? What if I am in denial about everything? What if I am a monster? Why did I bring that person up that day? Why did I talk about him? What if I am like him? What if there’s a link? He seemed so normal but wasn’t, what if I am like that? What if I don’t know if I am like that? Who am I? Why won’t this stop?

That man was a local convicted paedophile. My hands shake as I write this. I mentioned him at Christmas, five weeks after having my fourth baby and already suffering with harm OCD, while talking to the crisis team about the harm OCD and a BBC drama we had recently watched before the harm OCD began. I said, “I’m disturbed by the drama I watched, how easy it was for this man to be stood watching his wife sleeping then just jumping on her and strangling her to death. He went from being so normal to not, and that terrifies me, how anyone could just snap. That’s why the harm thought bothers me, I keep thinking back to that drama and how easy it looked for him to snap. Like that man we knew. He seemed so normal and then he wasn’t, he’s now a convicted paedophile”….and that was it…that was the moment the life destroying thought popped into my head, ‘What if I was a paedophile?’.

That one thought brought my world as I knew it crashing into a million pieces, cutting my soul as it broke. That one thought broke my heart and took time I will never get back. I was a statue sat rotting. I stopped eating, drinking, sleeping and how my heart didn’t stop I don’t know because it felt like it was going to explode. I hoped it would, because then I could die without having to take my own life. The compulsions spiraled. I did everything possible to get as far away from my own thoughts as I could because I was terrified to my core. I sat in the bathroom contemplating ending my life. I have never ever felt like that before. I never thought I would be a person to even get close to that edge, yet there I was, stood right up close to it, looking over into the darkness…..I’ve taken a moment because the tears keep flowing as I think back…I thought I would never recover from that moment. I was questioning my own character, my own morals, my own soul. I felt like I had lost everything I was. I couldn’t go near my own children or look at them. Not even photographs. It was painful being in my own home because everything reminded me of them. I couldn’t watch anything to do with children, or be near anything that reminded me of children. Everything was ruined. I hit rock bottom.

I have tried to avoid writing this. I have tried to write things in a way I can try and convince people that I am really a good person and no threat to anyone. I have torn my head apart trying to think how I could possibly word this to make it sound more understandable. I didn’t even understand it. Truth is, I have a recognised mental illness, truth is this theme of OCD and thoughts is so common that there is literature and workbooks with separate sections just on this theme, this is my OCD theme. Sexual OCD. This is what my OCD latched onto because it was the easiest target for it. I grew up in the church, strong in my morals, babysitting countless times over the years for family and friends, working in a nursery before having my own children. I grew up being told, ‘You’re so good with children, you will make a great mother, you are so kind and patient, you are so good at your job, you are a wonderful mother’ and I knew growing up my soul purpose was to have children of my own, to raise strong independent children who will go out into the world and make it a better place. And OCD decided it would take that security and knowledge in myself and rip it apart without mercy. How I have begged for Mercy!

I didn’t ask for this. I didn’t ask for this to happen. I have been in pain, physical, emotional, mental pain. Pain that has made me question living. The fear of sharing this truth in detail has been causing panic attacks and stress I can’t even measure. But today I have had enough. I have had enough of being to beaten down by the doubt OCD causes to stay quiet any more. I am sick of the stigma. I am sick of the fear of judgement. Judgements I am guilty of making before having these thoughts. If someone said this to me before, you know what, I would have questioned it, thinking ‘But are you then? How do you know you aren’t? Surely you would know if you were or weren’t?’.I understand hearing such disturbing thoughts said by someone is difficult. It’s ugly. I fear being judged by my friends, family and the entire world. I feel guilty and shameful everyday for these thoughts, I feel awful everyday, I beat myself up everyday looking for proof one way or another. I know the difference between an OCD fear and an actual paedophile (even the word fills me with panic), I know I have this theme because it goes so against my morals and is not linked to my being, I am learning to recover. I am learning to accept thoughts are thoughts, they mean nothing, they are not connected to me. I am learning to let them pass then carry on with my day, I have learned more in the last three months then I think I learned in three years at college. I have learned that this is treatable, I have learned that this is nothing to do with who I am, I have learned that this will take time and there will be falls on the way (that has a very literal meaning to me as I am currently typing this with a broken ankle!), I have learned that these thoughts ‘are not me, they are OCD’. This has affected the most important part of my life, the part that completes me, the part I love unconditionally and would die to protect. It’s affected my relationship with my children and I have made big steps in regaining my confidence again.

I promised I would help advocate for OCD. That I would become a warrior fighting against everything OCD throws and everything society throws at it to. I hope by finally, after all this time, by sharing the absolute deepest fears in me, that I have kept that promise, and this will give you the strength to fight as well.

A x

Falling into the OCD trap

I couldn’t blog yesterday because the OCD seemed to grab on.
I am currently doing a mindfulness workbook by Jon Hershfielf, MFT and Tom Corboy, MFT. I was so keen to get started but delayed it for a few hours when I looked at the contents and realised that there was a section on my specific theme. Seeing it there made me spike slightly. I flipped straight through to that section and read the first few words and then closed it. I knew that I would be working on my specific primary theme and needing to write about it which I still can’t do in any real detail.
I left the book then mid afternoon I picked it up and began reading it. It was interesting and made sense. I began working through the initial sections of it answering questions then challenging them as directed.
I sat for hours getting through the workbook. After seven hours we were watching a tv show in the background and a very attractive celebrity was on it. My husband at first when the series began last week said he didn’t find her attractive and said she wasn’t his type but tonight when the adverts came on he said, “oh look she’s in an advert to” and I said, “I knew you’d end up liking her.” He smiled and said “What?” and he said in the advert with straight hair she did look quite attractive. I began to get upset. Not because he thought a celebrity was attractive, she was, and I knew that. I was already thinking while watching the show, ‘Why can’t I be normal like them?, they all have it okay and don’t have OCD, why do I have this stupid illness’. 
All day I had my primary thought circling my head and I knew I was falling into the trap of trying to prove it or disprove it. I knew it had been bothering me all day and I wasn’t applying the right tools. I was falling into its trap of ruminating, withdrawing and telling the thought to just ‘go away and leave me alone’.
I burst out crying after the celebrity comment. I told my husband I was already irritated that the thought was bothering me more than it had been and this work book was reminding me in every paragraph how wrong my way of OCD thinking is. Every paragraph talked about different thinking patterns, ‘magnifying, future predicting, zoning in’ and I did it all and that upset me. I felt like I was being berated by this work book. My husband said it would be a good idea to stop now but I couldn’t. I wanted to stop but just wanted to be fixed and had to keep going. Another hour and I could barely absorb the information. I was struggling to even read the sentences having to reread parts over and over and over and it still wasn’t sticking. I wanted to get to the section on my theme even though that was so much further into the book. I wanted answers, I wanted to do the exercises and feel better or cured.
OCD had its claws so far into me and I allowed it. I sat and through passiveness to the world around me and through rising anxiety I allowed it. After eight hours of the OCD workbook focus my husband took the book from me. He then nodded off in the chair and I began googling for reassurance. I watched video after video, looked on peer communities and read information. I couldn’t help but try and feel better.
Another two hours later and I finally heard on one of the videos someone mention, not being alone. It hit me quite hard. I had let the OCD take hold and tell me, ‘I’m all alone, I’m the only one feeling like this, I’m isolated’ and I forgot about the millions of others going through this. The many many others that have the exact theme that I do. That have the exact same thoughts and worries that I do. Then I felt the slight relief. I could let go slightly. I wrote these words down, ‘you are not alone’ as pictured in the feature photo taken straight from my note book. It helped.
I have woken feeling a bit uncomfortable and drained from yesterday and annoyed I let myself fall into the traps. I did all the compulsions I was working hard to stop. I allowed myself to start believing the horrible lies of OCD. Yesterday OCD won that battle but as I will remind myself, it will not win the war.
A x

The ‘Exposure workout’

I am learning new things about OCD everyday. Learning about OCD is like New York. It’s like trying to visit every avenue, every shop, every room in every apartment and shaking hands with every person who lives there. OCD is always awake and making noise just like New York. But people live in New York, they live happily there despite the noise, despite how big and busy it is. I feel like I will spend my life time learning new things about OCD and I feel okay about that because I know I will learn what I need to to help myself. I will learn to stop listening to the noise.

Yesterday I learned something new. I was reading some articles online about my OCD themes and it was intense. Every other word was a trigger word. Words that I still struggle to say out loud. Reading them was difficult. When I first started reading the first article I chucked my phone onto the sofa because I could physically feel myself getting worked up, and had physical pain in my chest as I tried to force myself to keep reading so I just chucked it away and said, ‘I can’t’. I spoke to my husband and said I was struggling and that I knew what my counsellor would say. He asked me what that would be. I said, “She would say ‘why can’t you read it?’ And I would reply ‘Because it’s too hard, the words are triggering a panic attack’, and she would ask, ‘And what is panic?’ and I would say, ‘A fight/flight reaction to a perceived threat releasing adrenaline and cortisol…so because I am reading words that are uncomfortable and horrible I feel like there’s a threat so I am wanting to avoid as a fight or flight response’ and she would say, ‘Okay so why are these words uncomfortable to you?’ and I would reply, ‘Because I have attached meaning to them’, then she would give me that look and I would smile nervously at how silly I feel because I know all this already but still can’t apply it to myself.”.

I had literally relayed part of my counselling session to my husband which just demonstrated to me I do know what to do and I do know what OCD is doing to me and I do know why I am carrying out compulsions like avoidance and I do know doing that will not beat this. So I picked my phone back up and finished the article. I reminded myself, that I am not reading this to torture myself or test myself, I am reading it to help myself and of course the OCD will tell me to stop doing that. It wants to keep me miserable. I read it because it was an informative article about my main fear and although written very bluntly using my triggers words, what felt like hundreds of times, I knew I needed to finish it. I did and to my surprise I reflected on it for a short while then carried on with my day. I had won that battle. I didn’t feel like Rocky when he finally made it to the top of the steps. I didn’t feel victorious or super proud. I just felt a bit deflated. We got in the car and I read more articles from the same person, with the same blunt tone. There was no cotton wall writing, it was written as it is, with every horrible word being used in nearly every sentence. I read a couple of these articles then we picked our son up from school and had to get straight to hospital for an appointment. I was feeling more deflated. I felt mentally drained and physically exhausted and wasn’t sure why. I thought by pushing myself to read those articles was a big step so why did I not feel better about it. Why was I feeling so low in my mood?

The hospital visit was stressful, a nurse was quite unkind, telling our children off even though they were actually playing so well and I felt so bad for not defending them. I couldn’t speak. I struggled even speaking to the doctor because I could hear her still telling them off when they weren’t doing anything wrong. Where was my fight? Why wasn’t I able to tell her to not tell my children off? Why was I feeling so defeated?

We got home and the feeling wouldn’t lift. I was so tired and felt so foggy. I wasn’t sure why. I had exposed myself to triggers and really worked on using the tools I have learned. I was in the middle of chatting to my husband and a notification popped up saying that one of my favorite advocates was now live on youtube. This is the first time I have watched her videos live, so I jumped on to watch her live video. I can’t believe what they discussed! They talked about what I had experienced. The doctor, Jon Hershfield, MFT, was likening OCD and learning to manage it to a workout at the gym. He explained that when you are learning to build muscles you have to start small with 10kg and keep tearing and repairing your muscles until it feels easy, once your form is perfect with that weight you move up to 15kg then again keep training until your form is perfect and it feels easy then you move up weight again and so on and this is what happens in exposure therapy. You start with a trigger that feels small or anything you think would be good to start with, even just writing the first letter of a trigger word is a good start, it’s completely down to you and your counsellor to work out where is your best individual starting place. There is no right or wrong.

He then went into the exhaustion part of it. This is the part that really helped me yesterday. He said just like when you have had a really good workout at the gym you feel fatigued, weak, a bit unsteady etc and the exact same is true for your brain. When you are exposing yourself to triggers you are working out the ‘muscle’ in your brain that is helping you to manage the OCD and because you are giving it a workout and putting it through it’s paces it’s normal to feel fatigued afterwards, to feel a bit deflated and not be jumping for joy (before the OCD doubt creeps in and tells you, ‘well you are really elated when you conquer an exposure so what if….’, I’m going to tell you it is also great if you can feel wonderful about your achievement, because it is a great achievement, there is no right or wrong way to react).  This feeling is actually showing that you have had a good ‘brain workout’. Of course, if you jump on a treadmill on the highest setting for the first time then you could fall off, smack you face, and bolt off to the other side of the gym and the same is true for your brain. If you try and do the big things first you could feel like you are taking steps back. I noticed yesterday I could read the article out loud but towards the end of the third one I could no longer say my trigger words any more and my tone changed and my husband could tell I was getting more uncomfortable. I now know that yesterday I should have stopped after just one article or as soon as I started to feel I couldn’t say the words any more. I could have said to myself, ‘Okay, you’ve just read an entire article full of trigger words, even when you put your phone and said ‘I can’t’, you picked it up and carried on and reminded yourself what OCD is and that’s amazing, so now it’s getting harder because your brain has already worked hard today so take this victory and tomorrow you can try again’. This is hugely helpful to me. I am understanding how to pace myself, how to react when I feel like I can’t manage to avoid avoiding and it’s changed my perspective from feeling like I must have failed that exposure to actually I made such an important step yesterday that will help me on my path of recovery.

You’ve got this!

A x

Seeking someone the same

While discussing my blog with my counsellor yesterday she suggested it would be a good idea to blog about what I was talking about.

So I have discussed how much detail to go into around my violent/sexual thoughts OCD and at the moment I am just not ready to go into huge detail. I am still in early recovery and it’s an area that although I have made very good steps in, it still bothers me. Even though I understand these thoughts are nothing to do with me or my morals I still can’t shake that uncomfortable feeling that comes in waves.

I was explaining that when I looked online I was looking for other OCD stories based on my exact fear. I was desperate to find others who had my exact thoughts. I found an OCD advocate online who was amazing, I could watch her talk about violent/sexual OCD and I didn’t feel as ashamed, disgusted or guilty, she helped me to feel better about OCD and that it isn’t anything to be ashamed about. She spoke about it in such a light hearted but also factual way that I felt I could understand this even more. I remember watching and I was desperate for her to say what her fear was. She listed examples and mentioned my fear but didn’t say which ones were her fears. I thought, ‘Please say which is your fear so I can know if it’s the same as mine’. I wanted to know this person I looked up to had the same theme as me. However as I watched more of her videos and didn’t learn what her specific thoughts were that ‘need to know’ reassurance seeking compulsion lessened. I stopped caring what her specific theme was and I was able to apply the tools I learnt from her videos to my OCD even though I didn’t know if our specific thoughts were the same. After a while I learnt what her fears are and by reading her book I learnt more about her OCD and how it manifests. Her fears do touch on mine but her main fear isn’t the same as my main fear and it has taught me that it doesn’t matter what my theme is compared to someone else (although it is very reassuring to know many others have my exact theme, it’s actually not going to make my treatment any more effective if I only seek out research on just my theme) because OCD has the same traits and patterns no matter what the theme or content is.

I thought if others are reassurance seeking like I was, by needing to find others with the exact same thoughts, then maybe it’s best if I don’t go into super great detail because I wouldn’t want someone reading my blog or watching my video then me going into huge detail and the person thinking, ‘Well your thoughts aren’t the same as mine so this won’t be of help to me’. My blog/video/page is for everyone with OCD, with any form of OCD and I think people could begin missing out on important information by only ‘zoning in’ on people with their exact fear. The theme isn’t important which is one of the hardest parts to OCD to accept. Of course, the themes are distressing and unpleasant and there are common themes and thoughts, though the imagination of OCD is limitless, so please don’t be worried if you experience thoughts or feelings that I don’t list. I try and list the more common ones but like I have said it’s limitless. It’s the process behind the thoughts and how you react to them that needs focus, not the theme. The themes can be interchangeable which just shows how the content of the thought is actually not important…For example you could have thoughts like:-

I’m worried I might be…a murderer or pedophile or rapist or an abuser or an attacker or gay or straight or having incestuous feelings or inappropriate images of feelings about my God, contaminated etc

What if I….Stab someone or hurt or sexually or physically abuse someone or run someone over with my car or want sex with animals, contaminate someone else and they get sick or die, or like men or women or have sexual feelings to a family member or become a murderer or pedophile or rapist or an abuser or attacker or gay or straight etc

I must be…evil or a monster or a bad person or becoming this thought or being punished or disgusting etc

A lot of the questions we ask because of OCD have the same base to the question so… ‘I’m worried I might be…What if I…I must be…’ but yet the content of the end of those sentences change to a whole variety of themes person to person.

This shows how OCD has common traits and follow common patterns.

I understand what a relief it is to hear someone say your own thoughts and fears because you know you are not alone, it’s a comfort to hear someone else with the exact same thoughts/fears and themes as yourself and to not feel so crazy because someone else is the same but it can also be reassurance seeking and that can make the OCD worse or you may miss out on help if you decide you are only focusing on researching a specific theme. I have gone into my past OCD issues and am okay with that as they do not bother me to the extent the violent/sexual OCD thoughts have and continue to as I am early in recovery.

Whatever your theme/content/thoughts are, we are in this together. We all experience the same doubt, guilt, shame, fear, anxiety, embarrassment, low mood/depression, worries, what ifs, torment, pain and all the other emotions that go with it, of course to varying degrees person to person, and you may only have trouble with one specific emotion or all of them or other ones to like anger. There is no one theme that is worse than the other because to each of us, our own fear/theme/thoughts are the worst of the worst but the emotions that we all experience although different fears/themes/thoughts are all the same because that is what OCD does to us all.

I hope this is useful information as I feel it’s important.

A x

My OCD up close and personal; Social anxiety

This is the seventh instalment. I will discuss social anxiety.

I’ve had social anxiety since I was young on and off. I struggled with school at times, and crowded places. As my stomach issues got worse before my Crohn’s diagnosis I struggled being anywhere overly crowded or away from a toilet. I had a very social life despite times where I really struggled socially. I wanted to be normal. I wanted to be a social butterfly. I went to church every Sunday and would do volunteer projects with the church. This felt safe because it was doing God’s work. I would pray if I felt anxious and I would feel better. During my teen years and early to mid 20s I performed on stage in pantomimes, operatic shows and in musicals. I was so social and even when I was younger I use to visit nursing homes and sing with my friends. I went on trips and holidays and had parties. To everyone who didn’t know about my anxiety I looked super confident.

Since the OCD hit rock bottom in December I experienced a social withdrawal like I never have before. I couldn’t see anyone other than my husband and health care professionals. I couldn’t speak on the phone, I deleted social media, and couldn’t get out of bed for two weeks. I struggled going to appointments. I couldn’t wait in any waiting rooms. There was a point I couldn’t leave the house. Doctors came to our house because the thought of stepping out into the world while I felt like I was going mad or must be an evil person stopped me from doing anything. I had thoughts such as, ‘If people know what I am thinking they’ll think I am crazy, What if they think I’m a threat? What if they know I am mentally ill? What if I have other thoughts? What if I get triggered? What if I have a panic attack? What if I’m judged?’. I had it in my head that people might just ‘know’ that I was seeking help for mental illness and the thought of people being afraid of me terrified me. I couldn’t see friends. I couldn’t say my thoughts out loud to myself, so I couldn’t say them to my friends. I wanted to confess everything to all my friends, I felt so guilty about my thoughts and wanted to tell them everything but knew I couldn’t so I withdrew and distanced myself from friends and family. I told my close friend about the first harm thought I had as it was about her and I was hysterical and just needed to confess I had this thought about her because I felt so awful, ashamed, guilty. I felt like I was hiding something by not telling her but then I felt like I was admitting something by saying it out loud. It was just a lose lose situation but I reasoned that if I didn’t tell her then I wouldn’t be able to live with myself. So I told her.

Once my thoughts moved from harm OCD to sexual OCD, I hit a new low I didn’t even know was possible. Just when I thought it couldn’t possibly get worse, OCD found a fear that was so distressing to me, it broke me. I couldn’t even say it out loud to my counsellor. I couldn’t say it to myself. I still now haven’t written it or talked about it in any detail yet, only to my counsellor and husband. Once I was able to come off the sedatives, I could sit in the armchair but I couldn’t move. I would only move to go to the bathroom that was it. I was stuck. I wanted to be around my family but also alone all at the same time. My counsellor said it was because I felt safe in the chair. Not a threat to anyone and less likely to be triggered if I didn’t engage in life. She’s right. The armchair became my safe zone. I knew if I stayed still in the armchair then I wasn’t a threat and triggers were less likely to happen. It took, I think three counselling sessions before I could move. From there I began engaging in life again.

I still struggle socially. I needed to take two of my sons to two different doctors appointments on the same day, one in the morning then back again in the afternoon. That was a lot of exposure in one day. At first it felt okay but as the doctor ran late, the waiting room filled up and I started getting increasingly more anxious. I could feel myself getting restless, and starting to sweat and kept looking at the clock counting the seconds, begging the screen to show my son’s name so we get out of this heaving waiting room. I also feel paranoid when I am out that people are looking at me and laughing or talking about me. I feel like maybe I am showing how anxious I am so I try to look as calm as possible. That evening I did have a panic attack. I felt overwhelmed by the day. I felt forced to have to be out in public in a busy waiting area twice before I was ready to do that, so I felt stressed and upset that it felt so difficult to just go out. Instead of looking at how well I did, at how calm I was despite the anxiety kicking in, to have taken my sons all by myself to their doctors appointments, even at one point having a conversation with a lady in the toilets while I changed my youngest, all I could focus on was the fact I was still anxious.

Last week I saw one of my closest friends in hospital. I knew I had to go. I had missed so much and couldn’t keep letting her down. I felt so nervous, I couldn’t sleep the night before and felt jittery all the way in. But I went. I went and I sat by her side and supported her. For the first time since this started in December I was there for my friend. That weekend I did a 5km run (Well mostly a run with walking at times to). I am not fit at all and I always said ‘I would never do a 5km run’. I needed to do something that I could control because I was sick of OCD controlling my life. I read that running was good for the mind and I was willing to give it a try. I struggled to keep eye contact with friends we knew there that were taking part to. At one point I had to lean forward to try and catch my breath as the crowds of runners gathered. My husband stayed by my side the whole time and at one point I wanted to quit. Through some tears I said to my husband, ‘I want to quit this but I won’t. I can’t control that I have OCD right now, but I can control whether I finish this 5km. I am in control of my body and I am going to finish this’. I finished it not quite last and was shocked I actually did it and in the snow. The Monday after the 5km (so last Monday), I broke my ankle walking in the woods and I had strangers holding my hands, comforting me, wrapping blankets around me and my OCD took a back seat during that time. Later that day a friend I haven’t seen in months dropped some beautiful flowers off, my favourites, and a card and stood in the hallway and had a chat before going. Then a massive step, the biggest step really, I had a close friend over for a play date and opened up to her about it all. I actually said the fear out loud and for the first time I didn’t cry or feel sick. I felt nervous yes, but I just said it. She didn’t judge me, she didn’t run away thinking I’m a monster. She understood. She knows about OCD and she really heard me and was so kind. How blessed I am to have such beautiful understanding friends with the biggest hearts and the kindest souls. Then today I had my other close friend over for a short while and again, I was met with nothing but love and compassion. I’m actually tearing up writing this because every time I let a friend in to what’s been going on, every time I say my fearful thoughts out loud, every time I write more about my OCD, every time I tell myself, ‘It’s not me – it’s OCD, these thoughts and feelings are a symptom of OCD…I feel this bothered by it so much because it’s a chemical imbalance in my brain that’s sending false messages and so I am going to do something else and I am going to revalue these thoughts and feelings as nothing but the nonsense they are, they are not real and I will work around them’…every time I do all these things I am stripping OCD’s power. I am winning. I am getting stronger. I still cannot be without my husband for long, I still cannot go to public places without feeling anxious, I still cannot go to the dentist even though I need to. There is still so much I need to work on but for now I am making steps and each time I do I am giving the finger to OCD!

A x

My OCD up close and personal: Hypochondria with good reason

This is the sixth instalment in my series talking about my overlapping OCD. I discuss the difficult reality of how OCD made me pray for cancer.

This area of OCD has always been present from a very young age but has not run my life to the extent the violent/sexual OCD has which I will go into in upcoming blogs.

Since I can remember I have always felt worried about my health. Growing up I would always worry about getting cancer and I would scan my body for moles that were changing and for any lumps. Sometimes I would avoid looking over my body when I had visions of actually finding something because I didn’t want it to come true. I feared death. I feared cancer and was often over run with thought about it. This overlaps into my emetophobia that I have previously blogged about.

My earliest memories are of being unwell. I have one memory from when I was under 10 and I was on the toilet in pain, and it was so painful that my sister was knelt by me holding my hand, telling me it would be okay. I was often sick with vomiting and diarrhea. I seemed to catch every bug going. I was often unwell after going to the beach and linked the beach to being unwell. I would remember getting in the car not feeling well ready to go home and feeling sand on my hands. I’ve never been comfortable around sand ever since I was a small child. I knew growing up there was something wrong. I was taken to the doctors multiple times and was told it was anxiety. I remember one time after a big bout of rectal bleeding my mum took me back to the doctor. He examined me and said it was just a tummy bug. Through 15+ years of diarrhoea, fatigue, pain, bleeding, mucous and weight fluctuations I was never sent for further testing at the hospital. When google became available it was a 24/7 feeding frenzy for my OCD. I could access all the unlimited information about every health issue conceivable. I couldn’t even count the hours I have spent googling health conditions. I have googled thousands and thousands of diseases and their symptoms, treatments, diagnosis and prognosis, although I tend to focus more on symptoms and symptoms checkers and then looking at case studies. I have had panic attacks about health. I remember when I found a lump just a couple of years ago on my foot and was convinced it must be cancer. I phoned my sister really upset and remember being in the bathroom just crying and praying it wasn’t cancer. It was a cyst. It has gone away since. Then when I found a lump on my head that gradually grew I didn’t get it checked for ages. I asked my mum to feel it and she was shocked I hadn’t had it looked at. During a scan it was looked at and I was told it was just another cyst that had a fancy name. Since then it has burst and reduced. I also had cysts form on my wrist and they all came and went to. I have been in and out of the doctors with different ailments but the one repeating issues was my stomach. This never went away. I felt like something was wrong. I was convinced this couldn’t be because of just anxiety but then I was showing tenancies of being a hypochondriac. I was googling all the time, worrying, having panic attacks convinced I had all sorts of diseases. I developed social anxiety and refused to go to the school. I would scream in the car begging not to go to primary school but through all this I couldn’t shift the bowel issues.

When I was 22 the stomach problems started again. Gradually getting worse and one night I could barely stand. I was on the toilet and could feel gushes of blood. I looked in the toilet bowel and it was full of blood. I tried to get to the sink to clean myself up but collapsed on the floor. I was vomiting over and over and could feel myself loosing bowel control as I couldn’t get back to the toilet. My then boyfriend, now husband, found me on the floor in the middle of the night and called an ambulance. One of the paramedics made my anxiety about going to hospital even worse by saying I was wasting their time for just a stomach bug and why couldn’t my partner have driven me because he should have finished his shift half an hour ago. I remember apologising profusely and feeling like a burden. Feeling like I am in everyone’s way has always been something I have struggled with. This experience didn’t help and I began having panic attacks. I was feeling sick and asked for a sick bowel and the paramedic said ‘You aren’t going to be sick are you? Ugh you should have stayed at home’. I was so embarrassed and mortified to be told I was wasting their time and shouldn’t be going into hospital. I felt so light headed, foggy, and faint and couldn’t stop shaking. My legs were cramping and I could see how pale my skin was. I got to hospital and had tests and scans. On day three or four I was panicking. I wanted to go home. I was asked to keep all my stools and urine in bowels for testing but the nurses were busy so I was having to leave them in the toilet and with going multiple times an hour they were building up. I was so embarrassed that other patients were going in to the toilet seeing my samples that had my name on them. I kept asking if they could be taken away but they were left. I then had my bed changed for a broken one so someone could have mine because in the nurses words ‘you’re young and healthy’. I had no issue giving my bed to someone more in need but implying I was young therefore healthy upset me. I was in agony, needing assistance to even make it the toilet at times. I had soiled myself on night one because I didn’t even feel it coming out and having to tell the nurses was absolutely humiliating to me. I was loosing blood and needing iron because I was anemic, I needed constant fluid via IV because I was so dehydrated. I hadn’t eaten in days and hadn’t been able to eat much for a couple of weeks. I was needing constant pain relief for the agony in my stomach. I texted my mum that I was self discharging. I wanted to leave. No one seemed to see how unwell I was. I knew this was real and this wasn’t just anxiety. I was also battling the thoughts, ‘What if this is cancer? What if they are missing it? What’s wrong with me? Why am I so unwell?’ What have I done to deserve this?’

I was getting ready to self discharge and my mum turned up. She came and sat with me and by this point the nurses had called the doctor to come and chat to me. He sat down and said he had personally looked at my scan results and wanted to come and tell me face to face. He said three words that changed my life. “We’ve found something”. I asked him to repeat what he had said. He said ‘They have found inflammation and that with the inflammation on the scan and the blood markers being high it’s pointing towards bowel disease’. I burst into tears. I felt validated. I felt relief. I felt heard. Finally. Finally I was getting answers to a life of pain. I went for an colonoscopy and had it confirmed. I was diagnosed with Crohn’s Disease. It took time to sink in but I was finally able to begin treatment to get it under control.

During my life I have had gestational diabetes through all four pregnancies, impaired glucose levels outside of pregnancy (I am due a test to find out if I still have diabetes since having my son last November), a suspected TIA, a blood clot in my right eye/TIA, hemiplegic migraines, anaemia needing iron transfusions, Crohn’s disease and other health issues. These are real issues that affect my daily life. Therefore I feel that yes the OCD makes me panic over everything, even health conditions I don’t have, and it makes me feel that I have to reassurance seek every tiny symptom, I have to google things I know have nothing to do with me, but I have to check anyway. I spent my life having bowel disease missed because I wasn’t sent to the hospital during all those years once. So I have doubt because I have feel like I was failed. So I feel that yes I have hypochondria tenancies but for good reason!

Since December when my OCD ruined my life and I was diagnosed I no longer worry. Yes I google still but I’m not scared to the point of panic attacks about developing diseases. OCD, for me, is the worst. So I no longer fear physical health problems.

A x